First off, thank you for the messages and wishes. Kim is back home and resting LOTS - which has pretty much been the pattern for the past 7 months. No clots on the lungs, which was one of the biggest worries. We took Kim to A&E (via ringing 111 and a letter from the local walk in Centre) because her condition had deteriorated over the past two weeks. We also felt her doctors was not doing much, apart from a few blood tests, which she is terrified off and then on Wednesday the nurse couldn't get find a vein. This is a strange virus and I understand to a certain extent that doctors are unsure how to treat Long Covid. Anyway, she has been diagnosed (in loose term) with Post Covid symptoms and fatigue - very similar to ME. There isn't any exact thing they can do for Kim at the moment, except try and reduce her heart rate which was an average of 115 whilst in hospital. She is starting on beta blockers on Monday to help try and lower her pulse and lessen her migraine like headaches. I took Kim out today to collect her new glasses, one of the few times she has been out this past month. She helped with the shopping, from the wheelchair we have borrowed, as walking even the shortest distances wipes her out. I'm just glad that the doctors have started trying something. Thanks again friends in these very strange times. x x
The beta blockers should have the right effect on the heart rate, but their most common side-effect is fatigue, so watch out for that.
As someone who’s had ME for 10years including a year of basically being bed bound I feel her pain and washing her a speedy recovery.
All the best to both of you. I’m a fellow ME sufferer as well. So I understand how dreadful you can feel day to day. But although she may not feel like it now. I can promise you that things do improve. For this condition time really is a great healer. one thing I strongly recommend is finding something she enjoys doing. Even if it’s only for five minutes at a time (shut up Haynes, I know what you are thinking) a few minutes of positive thought and experience goes a long way to helping ME recovery. For instance, just a drive to a nice view and a brew in different surroundings. Try and do something nice every day. Quality not quantity. best of luck and keep smiling.
She needs lucozade in a glass bottle with cellophane around the outside, fixed my broken leg and my tonsils when I were a lad : get well soon @Louey jnr xx
It’ll be a hard road for a while, mentally and physically, for all three of you, so make sure to take care of yourself and Heather too. Hopefully now the hospital are on the case and Kim is ‘in the system’ as it were, getting help and support will be easier. Good luck, and hopefully Kim’s return to health will be steady and quick.
Hope she gets some improvement soon mate As someone who’s suffered from chronic fatigue for years and now struggling with heart failure as well I can understand what she’s going through Sending hugs to you both.
There was an article in last weeks Sunday times along the lines you describe, a Facebook page has a lot of people who have same symptoms and some helpful advice apparently. Will look for the article and post here. All the best.
Can't find it, composted apparently. Was late Sept but this article covers the same stuff https://www.google.co.uk/amp/s/amp.abc.net.au/article/12701112
